I've made it half way through my last (hopeful) chemo for a while. I've two 2 hour chemos left today and Friday, and a mega 7 hour blast on Monday. I dread the 7 hour treatments the most. Imagine me being chained up for over 7 hours. I'm just thankful they give me meds that allow me to fall asleep.
Radiation continues until mid-May. I won't have another PET or CT scan until mid-June, as they wait a good month for the medicine to see if it continues to shrink the tumors. I hope and pray it does.
I continue to be thankful and appreciate each and every prayer and blessing I'm fortunate to have.
Keep the prayers coming,
Much Love,
Julie
Thursday, April 16, 2009
Sunday, April 12, 2009
"Apprehension....and Family..."
The Easter Holiday has passed, and I had a great weekend with my family. Saturday our entire family was together in Falls City, Nebraska. Today, I had my sister's entire family here and we went to church and then they finished up tidying my mothers house to prepare it for sale. It was both a joyous and sad occasion in church, but I'm blessed to have the unconditional love of a tremendous family. I get so much joy out of my nieces, nephews and great nieces and nephews. My great nieces and nephews are still young, and they are the third generation of nieces and nephews, and I treasure each time I see all 6 great nieces and nephews. They truly bring the kid out and me. Seeing them has helped aid in the apprehension building for this final week of chemo.
Tomorrow is the 7 hour mega-day, and I've packed my bag with magazines, movies, my mp3 player and my iPhone. My sister, my role-model and best friend, will be with me which makes these long days much more tolerable. I've always been extremely close with Jane, and we are growing even closer. She and Wes have been such a phenomenal strength for me, and without them, I wouldn't have as much courage and enthusiasm. They are my number one cheerleaders.
I doubt I sleep much tonight, but that's okay. That means I'll be tired tomorrow and will hopefully sleep during most of the 7 hours of chemo. I usually try to stay awake for the first couple of hours, and then if I'm fortunate to nap for a couple of hours, it makes the time go faster. The 2 hour chemo's are much more tolerable, and go so much faster.
I'm hoping everyone had a lovely Easter with family, friends and loved ones.
Much Love,
Julie
Tomorrow is the 7 hour mega-day, and I've packed my bag with magazines, movies, my mp3 player and my iPhone. My sister, my role-model and best friend, will be with me which makes these long days much more tolerable. I've always been extremely close with Jane, and we are growing even closer. She and Wes have been such a phenomenal strength for me, and without them, I wouldn't have as much courage and enthusiasm. They are my number one cheerleaders.
I doubt I sleep much tonight, but that's okay. That means I'll be tired tomorrow and will hopefully sleep during most of the 7 hours of chemo. I usually try to stay awake for the first couple of hours, and then if I'm fortunate to nap for a couple of hours, it makes the time go faster. The 2 hour chemo's are much more tolerable, and go so much faster.
I'm hoping everyone had a lovely Easter with family, friends and loved ones.
Much Love,
Julie
Saturday, April 11, 2009
"An Easter Dinner...and an apartment..."
Today my entire family ate dinner in Falls City, Nebraska at my niece Angela's home. It was a wonderful time to be surrounded by family. We also took some furniture to my mothers apartment, and her place looks cozy. I was pleased to see that my mother is happy and comfortable in her new apartment. She is adjusting well considering both our lives stopped on a dime and changed rapidly.
I'm a tad apprehensive about next weeks chemo. I have, starting on Monday, a 7 hour session, followed by Tuesday through Friday 2 hour sessions, and then the last session the following Monday, another 7 hour mega session. The 2 hour sessions are tolerable. The 7 hour sessions require medicine that pretty much knocks me out and allows me to sleep. I will be glad to get this week over. Reminder to friends: Send strong stomach tissue!
Tomorrow is Easter Sunday. I pray everyone is surrounded by family and friends and has a Blessed Easter!
Much Love,
Julie
I'm a tad apprehensive about next weeks chemo. I have, starting on Monday, a 7 hour session, followed by Tuesday through Friday 2 hour sessions, and then the last session the following Monday, another 7 hour mega session. The 2 hour sessions are tolerable. The 7 hour sessions require medicine that pretty much knocks me out and allows me to sleep. I will be glad to get this week over. Reminder to friends: Send strong stomach tissue!
Tomorrow is Easter Sunday. I pray everyone is surrounded by family and friends and has a Blessed Easter!
Much Love,
Julie
Wednesday, April 8, 2009
"A Doctor visit....and GOLF..."
Today Wes and I went to my afternoon radiation appt, went and had bloodwork drawn, and met with our oncologist. She informed me my next round of chemo would be tougher, and that we need to tweak the nausea meds. That was good to hear. She also is having me take Sucralfate, a pill that you dissolve in water to aide in protecting the throat. Apparently the radiation and chemo will both be tough on that area next week, so she's having me do this daily. She also suggested I take my anti-nausea meds at night instead of in the morning. I explained the nausea as occcuring the worst when I first wake up, so she's tweaking some things, and will tweak them as well during next weeks chemo. Wes asked her about plans for the summer, and if I would be needing another round of chemo. She said they do not do any CT or PET scans until one month after my last radiation appointment (which should occur in mid-May), but she's hoping this will do it. I'm a little apprehensive about next weeks chemo, but I know I have to endure it. I just hope I'm able to sleep during both 7 hour sessions, and the 2 hour sessions.
After I mentioned that I hoped to get back on the golf course this summer, the Doctor mentioned I would be a good lung cancer patient to give a "quote" for their golf tournament. That made me feel good, and I said as I love to write, I would do whatever she asked.
Keep the prayers coming.
Much Love,
Julie
After I mentioned that I hoped to get back on the golf course this summer, the Doctor mentioned I would be a good lung cancer patient to give a "quote" for their golf tournament. That made me feel good, and I said as I love to write, I would do whatever she asked.
Keep the prayers coming.
Much Love,
Julie
Friday, April 3, 2009
"The Pink Flamingo's and my Mother..."
“The Pink Flamingo’s and my Mother…”
Today I was able, puny and all, to make it to radiation. They think I must have caught a bug, as it’s too late for the type of nausea I had to be related to the chemo 8 days out. Regardless, I’m glad my stomach, while still a tiny inferno, is not afire like it was yesterday.
My dear friend Jenny Smith drove me to KU med today. Jenny, a former cheerleader, was her typical spirited self and reminded me that I need to continue to exhibit my “zany” persona. She reminded me of the “Pink Flamingo” incident, and it brought up many laughs. Two summers ago, my hairstylist friend Diana and I were shopping at Wal-Mart and found those ‘Pink Flamingos” in the bargain aisle. I thought it would be creative to start a chain and signature page, and go place them in our friends’ yards late at night. We decorated 4 flamingos up, attached a note with instructions that whomever received them had to adorn it with something, and move it to someone else’s yard within 24 hours.
We left spots for 20 signatures attached to each Flamingo, and the last signature was reserved for a return to the Blair front yard. My intentions at the end of the Flamingo escapade were to have a BBQ and everyone who had been graced by the flamingo yard art would come to our home for a “Flamingo Party.” Well, long story short, 3 of the 4 Flamingo’s found there way back to our house. It was amazing and the birds looked completely different, and were decorated with a variety of tokens and gawdy, tacky trinkets from each household. However, it was amazing and fun and unique to follow the trail of who had received the lovely Pink Flamingo’s in their front yard. It was one of my most unique ideas, and a fun conversation piece for a span of that summer. We never did have the BBQ, but that may be a new summer project for me again! Jenny simply reminded me that that creative soul still exists, and I need to keep my chin up. It was good, sound advice from a good friend.
I’m a little ambivalent tonight. I’ve been my mothers’ primary caretaker for the last 10 years. She’s moving tomorrow, her house is nearly empty, and, while I know this is best for her, I wasn’t prepared for her to move out of town. She’s needed assisted living for quite some time, and we were preparing to find her a place in Atchison. I’m going to be lost not looking in on her, running her errands, calling her multiple times daily and doing “honey-do” chores around the house. Fulfilling her needs allowed me to nurture someone. It fulfilled my need since I don’t have children, but still had the need to take care of someone. While my world was hectic, I still saw her daily and will miss her terribly. I hate seeing both of us having our lives changed in the span of about a month. I do know that Falls City, Nebraska has my brother and his wife, and my niece and her husband and my three great niece and nephews, and so “Grandma” is getting all kinds of attention from the little ones. That is wonderful and so necessary for her to experience right now, and I’m pleased that my great nieces and nephews adore her and will get to experience my mom’s perky spirit.
Hopefully, with a little luck, I won’t be as puny tomorrow, and will be able to go to KU “Beta Theta Pi” Moms weekend with my sis and nephew. Nothing could make me smile more than being around both “family” and “KU.”
Much Love,
Julie
Today I was able, puny and all, to make it to radiation. They think I must have caught a bug, as it’s too late for the type of nausea I had to be related to the chemo 8 days out. Regardless, I’m glad my stomach, while still a tiny inferno, is not afire like it was yesterday.
My dear friend Jenny Smith drove me to KU med today. Jenny, a former cheerleader, was her typical spirited self and reminded me that I need to continue to exhibit my “zany” persona. She reminded me of the “Pink Flamingo” incident, and it brought up many laughs. Two summers ago, my hairstylist friend Diana and I were shopping at Wal-Mart and found those ‘Pink Flamingos” in the bargain aisle. I thought it would be creative to start a chain and signature page, and go place them in our friends’ yards late at night. We decorated 4 flamingos up, attached a note with instructions that whomever received them had to adorn it with something, and move it to someone else’s yard within 24 hours.
We left spots for 20 signatures attached to each Flamingo, and the last signature was reserved for a return to the Blair front yard. My intentions at the end of the Flamingo escapade were to have a BBQ and everyone who had been graced by the flamingo yard art would come to our home for a “Flamingo Party.” Well, long story short, 3 of the 4 Flamingo’s found there way back to our house. It was amazing and the birds looked completely different, and were decorated with a variety of tokens and gawdy, tacky trinkets from each household. However, it was amazing and fun and unique to follow the trail of who had received the lovely Pink Flamingo’s in their front yard. It was one of my most unique ideas, and a fun conversation piece for a span of that summer. We never did have the BBQ, but that may be a new summer project for me again! Jenny simply reminded me that that creative soul still exists, and I need to keep my chin up. It was good, sound advice from a good friend.
I’m a little ambivalent tonight. I’ve been my mothers’ primary caretaker for the last 10 years. She’s moving tomorrow, her house is nearly empty, and, while I know this is best for her, I wasn’t prepared for her to move out of town. She’s needed assisted living for quite some time, and we were preparing to find her a place in Atchison. I’m going to be lost not looking in on her, running her errands, calling her multiple times daily and doing “honey-do” chores around the house. Fulfilling her needs allowed me to nurture someone. It fulfilled my need since I don’t have children, but still had the need to take care of someone. While my world was hectic, I still saw her daily and will miss her terribly. I hate seeing both of us having our lives changed in the span of about a month. I do know that Falls City, Nebraska has my brother and his wife, and my niece and her husband and my three great niece and nephews, and so “Grandma” is getting all kinds of attention from the little ones. That is wonderful and so necessary for her to experience right now, and I’m pleased that my great nieces and nephews adore her and will get to experience my mom’s perky spirit.
Hopefully, with a little luck, I won’t be as puny tomorrow, and will be able to go to KU “Beta Theta Pi” Moms weekend with my sis and nephew. Nothing could make me smile more than being around both “family” and “KU.”
Much Love,
Julie
Thursday, April 2, 2009
"A short post..."
The nausea hit today like a freight train, and the hair started falling out a wee bit. I felt so bad, I couldn't make my appt. for radiation. Cross your fingers and say a little prayer that this subsides quickly.
Much Love,
Julie
Much Love,
Julie
Tuesday, March 31, 2009
"The Ultimate Grammy Collection..."
I need to mention I received in the mail an "Ultimate Grammy Collection" from an old high school teammate from my high school years. She graduated in 1978, and I in 1980, but Kathy Smith must still remember how I adore Soul Music. She sent me an awesome CD, which has Aretha, Otis, The Isley Brothers, Tina Turner, Gladys Knight and the Pips, Marvin Gaye, Natalie Cole, EW&F and of course Donna Summer and my favorite song The Emotions: The Best of My Love song on it. Thank you Kathy Smith, AHS class of 1978. You made my day!
Much Love,
Julie Blair
Much Love,
Julie Blair
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